By Oonagh Corrigan, Richard Tutton
Genetic Databases deals a well timed research of the underlying tensions, contradictions and barriers of the present regulatory frameworks for, and coverage debates approximately, genetic databases. Drawing on unique empirical examine and theoretical debates within the fields of sociology, anthropology and felony reviews, the participants to this ebook problem the existing orthodoxy of knowledgeable consent and discover the connection among own privateness and the general public reliable. in addition they think of the a number of meanings hooked up to human tissue and the position of public consultations and advertisement involvement within the production and use of genetic databases. The authors argue that coverage and regulatory frameworks produce a illustration of participation that's frequently at odds with the studies and understandings of these collaborating. The findings current a major problem for public coverage to supply mechanisms to guard the welfare of people engaging in genetic databases.
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Extra info for Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA
They perceived these companies as ‘proﬁt-driven’, and voiced ‘alarm’ at commercial access to samples (Wellcome/MRC 2000: 6). Concern about public reaction to commercial involvement is expressed in the MRC guidelines: One of the major concerns in allowing commercial access to sample collections is the potential to damage the gift relationship between scientists and research participants. Research participants may be particularly sensitive to the idea of a company or an individual making a proﬁt out of the tissue that they have freely donated.
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A discussion document on the storage, protection and use of personal genetic information, London: Department of Health. Human Genetics Commission (2001). ‘Public attitudes to human genetic information: People’s panel quantitative study’, London: Department of Health. Human Genetics Commission (2002). ‘Inside information: Balancing interests in the use of personal genetic data’, London: Department of Health. Exploring languages of tissue donation 37 Kaye, J. and Martin, P. (2000). ‘Safeguards for research using large scale DNA collections’, British Medical Journal 321: 1146–1149.
Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA by Oonagh Corrigan, Richard Tutton